The Institute of Psychiatry and Neurology, Warsaw, Poland holds the HD research unit and clinic, which is a multidisciplinary entity based on cooperation between the Department of Clinical Genetics and I-st Dept of Neurology. The site has about 550 HD patients in continuous follow-up and is a part of European Huntington Disease Network (EHDN). The site actively participates in observational trials in HD (Registry and Enroll-HD), interventional trials and research projects.
Main tasks in the project
In WP6, IPIN will support the coordination and management of the clinical study, and will be responsible for the recruitment and management of patients in the HD cohort.