Christiane​ Will

Something about me

  • SLE diagnosis since 2017, not able to work and in need of long-term care since 2019
  • worsening symptoms including severe fatigue since 2006
  • former hobbies include playing the piano, attending concerts, swimming, rowing, cycling, walking with my dog, now more fond of reading

Why do I decide to help with IDEA-FAST consortium?

Although fatigue is a very disabling symptom, it is often not therapy decisive because you cannot measure it so far. I hope I can use my knowledge as a patient and physician and contribute to change this.

How did you find your role so far?

I am pleased to have a role in inspecting the workpackages, especially about the biomarkers, and I think my opinion is valued and ideas are taken seriously.