I was diagnosed with Rheumatoid Arthritis in 1996. The symptoms have been well controlled by medication, though I have had occasional flare ups.
I am not a “good sleeper”. I listen with envy when friends talk about their eight straight hours of sleep. However, I am fortunate that I rarely suffer fatigue in the day but I do get very tired by evening.
I am a retired teacher but still do some exam work and voluntary tuition. I try to exercise as I know it is good for my condition, so I do yoga, keep fit and aquafit when possible, and also enjoy walking. I love to travel when possible and see new places. Other interests are more home and family-based. I have four(nearly five!) grandchildren who are a great joy. I try to keep the garden looking tidy and like to cook (sometimes). I love reading and enjoy a wide range of fiction.
Why do I decide to help with IDEA-FAST consortium?
I was asked to trial some of the devices used in the IDEA-FAST study and enjoyed being involved. So, when I was asked to help further with the consortium I thought it would be interesting and, hopefully, help those whose sleep is more disrupted than mine.
How did you find your role so far?
I am looking forward to the experience!
This project has received funding from the Innovative Medicines Initiative 2 Joint Undertaking (JU) under grant agreement No 853981. The JU receives support from the European Union’s Horizon 2020 research and innovation programme and EFPIA and PARKINSON’S DISEASE SOCIETY OF THE UNITED KINGDOM LBG.