I was diagnosed with Lupus (SLE) in 1997, when I was aged 11. I currently don’t have any issues with lupus-related fatigue, but I have in the past
I am a busy mum of two young boys, enjoy walking, Pilates, and spending too much time on social media!
I am a physiotherapist with both clinical and research experience
Why do I decide to help with IDEA-FAST consortium?
I decided to assist with the IDEA-FAST consortium as I was interested in participating in research from the perspective of the patient rather than the clinician. I also wanted to assist in adding to the research in the area of my condition.
How did you find your role so far?
No experience to date
This project has received funding from the Innovative Medicines Initiative 2 Joint Undertaking (JU) under grant agreement No 853981. The JU receives support from the European Union’s Horizon 2020 research and innovation programme and EFPIA and PARKINSON’S DISEASE SOCIETY OF THE UNITED KINGDOM LBG.