identifying novel digital measures for fatigue and sleep disturbances that will provide more objective, sensitive and reliable measures of the severity and impact of these symptoms in the person’s normal surrounding.
one year longitudinal study with approximately 2000 subjects will be conducted
Participants with neurological or immunological disorders from various countries will be screened and recruited
Participants with neurological or immunological disorders from various countries will be screened and recruited
All participants will be given a combination of 2-4 digital devices for use in their own environment for several periods
Data on fatigue, sleep, selected activities of daily living and other relevant contextual information will be collected by smartphone several times a day while using the devices
In order to establish which devices are suitable for use, complex data analysis will be performed
The devices that met the criteria will be considered for future use in clinical trials
The novel clinically validated digital endpoint will be able to:
Mayca Marín, Marta Burgos and from Asociación Parkinson Madrid wrote a new blog post on the impact that the Covid-19 pandemic had (and continues to have) on people affected by Parkinson’s, as well as on
Thursday and Friday ( November 5 and 6) saw the running of the first IDEA-FAST Hackathon. It was a great success with 25+ participants from across Europe, spanning 8 partner organisations and 5 work packages.
For the Feasibility Study, the four pilot centres – University of Newcastle upon Tyne (UK), Universitätsklinikum Schleswig-Holstein (GER), Erasmus Universitair Medisch Centrum Rotterdam (NL), and George-Huntington-Institut (GER) – have now all received ethical approval for
The IDEA-FAST Blog has published its first contribution from Kirsten Emmert on the feasibility study: The IDEA-FAST feasibility study – Finding the most promising digital measures for sleep disturbances and fatigue
The IDEA-FAST data management platform first release is now live. The platform has been deployed and is ready to receive data collected from the Feasibility Study.
A study involving a key member of the IDEA-FAST [1] consortium presents new benchmarks to support the continued development of systems that enable healthcare practitioners to better manage patients with sleep disorders. The findings, which
This project has received funding from the Innovative Medicines Initiative 2 Joint Undertaking (JU) under grant agreement No 853981. The JU receives support from the European Union’s Horizon 2020 research and innovation programme and EFPIA and PARKINSON’S DISEASE SOCIETY OF THE UNITED KINGDOM LBG.
