The Institute of Psychiatry and Neurology, Warsaw, Poland holds the Huntingtons Disease (HD) research unit and clinic, a multidisciplinary entity based on cooperation between the Department of Clinical Genetics and I-st Dept of Neurology. The site has about 550 HD patients in continuous follow-up and is a part of European Huntington Disease Network (EHDN). The site actively participates in observational trials in HD (Registry and Enroll-HD), interventional trials and research projects.
Involved in the clinical observational study:
– coordinating study management at the site
– recruitment and management of patients in the HD cohort
Target recruitment:
• Huntington’s disease – 35
• Healthy controls – 35