The Institute of Psychiatry and Neurology, Warsaw, Poland holds the Huntingtons Disease (HD) research unit and clinic, a multidisciplinary entity based on cooperation between the Department of Clinical Genetics and I-st Dept of Neurology. The site has about 550 HD patients in continuous follow-up and is a part of European Huntington Disease Network (EHDN). The site actively participates in observational trials in HD (Registry and Enroll-HD), interventional trials and research projects.
Involved in the clinical observational study:
– coordinating study management at the site
– recruitment and management of patients in the HD cohort
Target recruitment:
• Huntington’s disease – 35
• Healthy controls – 35
This project has received funding from the Innovative Medicines Initiative 2 Joint Undertaking (JU) under grant agreement No 853981. The JU receives support from the European Union’s Horizon 2020 research and innovation programme and EFPIA and PARKINSON’S DISEASE SOCIETY OF THE UNITED KINGDOM LBG.