Coralie Bouillot

Something about me

  • I am a Sjögren’s patient and I had to wait more than 10 years for my diagnosis. I decided to volunteer and advocate for rare disease to raise awareness about them, help define the unmet needs and foster research.

Why do I decide to help with IDEA-FAST consortium?

  • This project is a very innovative approach, the quality of life of patients with these chronic diseases is dramatically impaired and fatigue, sleep and disability are rarely or poorly addressed by the scientific community.

How did you find your role so far?

  • I am looking forward to the experience!