Something about me

  • Sjögren’s syndrome since 2009
  • Significant fatigue problems running in cycles lasting 6-8 months. 
  • Interest include scuba dive, swimming, playing golf and tennis. Love going for long walks with my dog.

Why do I decide to help with IDEA-FAST consortium?

  • I agreed to help with IDEA-FAST consortium as fatigue was so debilitating and destroyed my life for years and I will always live in fear that it will come back to that extreme level.

How did you find your role so far?

  • Interesting and exciting