The IDEA-FAST Clinical Observation Study Has Ended!
On 31 January 2026, the final IDEA-FAST Clinical Observation Study participant completed their last visit, marking the official end of our COS, with a total of 1,887 participants across all study sites. IDEA-FAST marks one of the largest clinical wearable sensor studies worldwide specifically focused on validating digital endpoints across multiple chronic diseases. The sensor […]
Real World Stories – Andrés Hibjan
In this instalment of our Real-World Series, we had a talk with Andrés Hibjan, an active member of Asociación Parkinson Madrid. As an engineer and adventurer, he treats his Parkinson’s diagnosis as a lifetime journey to an unknown destination. Using his technical knowledge, he tries to track and research his symptoms to improve his own […]
Real World Stories – Dina de Sousa
In this installment of the Real-World Series, we have a chat with Dina de Sousa, a member of the IDEA-FAST Advisory Board. Dina, an HD family member and a patient advocate for many years, has been involved in the project for a long time. She has been a board member of the European Huntington’s Association […]
IDEA-FAST 2025 Year-in-Review
As 2025 draws to a close, we would like to extend our heartfelt gratitude to all our consortium members, partners, and supporters. This has been a year full of challenges, but also many successes for our project. You can check out our 2025 Year-in-Review, an overview of our most important achievements of the year. We […]
IDEA-FAST COS Recruitment is Complete!
November 27, 2025 Major IDEA-FAST Milestone Achieved! Recruitment for the Clinical Observational Study (COS) is now complete, reaching 1891 participants across 20 sites in 10 European countries. This marks a major step towards identifying digital biomarkers that can transform how we measure fatigue and sleep disturbances — moving from subjective questionnaires to continuous, real-world digital […]
Real World Stories – Eden Byrne
In this instalment of the Real-World Series, we have a chat with Eden Byrne, a member of our IDEA-FAST Specialist Advisory Board. A 22-year-old from Belfast, Eden is studying Childhood and Youth Studies, whilst also balancing volunteering and her health conditions. Eden was diagnosed with Long COVID, and since then has been an avid participant […]
Real World Stories – Nancy Brown
In this instalment of the Real-World Series, we have a chat with Nancy Brown, a member of our IDEA-FAST Specialist Advisory Board. Nancy was diagnosed with Rheumatoid Arthritis almost 20 years ago, and since then has been a fierce advocate and avid participant in clinical trials and projects. When did you get your diagnosis? What […]
The IDEA-FAST July 2025 Newsletter is Here!
We are proud to announce that the latest edition of the IDEA-FAST Newsletter is here! Check out some of the highlights:– Over 1700 participants recruited in our Clinical Observation Study, thanks to the hard work of the IDEA-FAST members– Spotlight on IDEA-FAST participants through our Real World Stories series– Most recent project deliverables– Latest publications: […]
Real World Stories – Jordi Cruz Gomez
In this instalment of the Real World Stories series, we had a conversation with Jordi Cruz Gomez, a physiotherapist at the Asociación Parkinson Madrid (APM) who also lives with Parkinson’s disease himself. Jordi is currently training to represent Spain in Climbing at the Paralympic Games in Los Angeles 2028. How did you learn about IDEA-FAST? […]
University College Cork Survey on Digital Endpoints and Patient-Reported Outcome Measures
Are you a healthcare professional working in adult medicine? Do you use or would you like to use patient-reported outcomes or digital tools in your clinical or research work? We would then like to hear from you! Researchers from our consortium partner, University College Cork, are conducting a brief 15-minute survey to understand how digital […]