IDEA-FAST Newsletter – September 2023
We are proud to announce the IDEA-FAST September Newsletter is here! Find out about recent events, publications, and IDEA-FAST partners, as well as upcoming IDEA-FAST activities. We would like to say a big thank you to all IDEA-FAST partners for their contribution and dedication to the project. Read the full newsletter on our page.
New Paper on Regulatory Qualifications of Digital Measures
Check out our new paper! The article reviews IDEA-FAST’s efforts to develop digital measures of fatigue and sleep disturbances for multiple diseases, and the advice provided by the European Medicines Agency on its plans for regulatory qualification of the proposed measures. The insights included in this paper can serve as a guide in the development […]
New Cambridge Cognition Blog Post on Partnership with IDEA-FAST
Patients with debilitating fatigue know they can often be left feeling ignored and maligned. While fatigue is surprisingly common across many neurodegenerative and inflammatory conditions, there is still widespread scepticism that the condition exists. In this article, Dr Michele Veldsman, Director of Neuroscience at Cambridge Cognition explores IDEA-FAST’s efforts towards quantifying and conquering fatigue. Read […]
Reminder: TMF and Lygature Workshop
From BITS to BETTER Reminder: Register now for the workshop on meaningful patient involvement in developing digital endpoints in research and disease management 22 September 2023, 12.30-17.00 o’clock, Beatrixgebouw (Jaarbeurs), Utrecht (NL) or online. In cooperation with TMF. UPDATE: Due to high demand and our wish to accommodate people living with reduced ability to travel […]
ISCTM Poster Announcement
Congratulations to Nick Taptiklis and Michele Veldsman of Cambridge Cognition who will represent IDEA-FAST at the ISCTM 2023 Autumn Conference. Nick’s poster entitled “Automated Extraction of Fatigue Content from Voice Diary Data”, as well as Michelle’s posters “High compliance to remote, high-frequency cognitive testing across immune-mediated inflammatory disease and neurodegenerative disease patients” and “Ecological momentary […]
TMF and Lygature Workshop on Patient Involvement
From BITS to BETTER – Workshop on meaningful patient involvement in developing digital endpoints in research and disease management Beatrixgebouw (Jaarbeurs), Utrecht (NL), 22nd September 2023 12.30 – 17.00 o’clock IDEA-FAST and several prominent large IMI (now IHI) projects are working on digital endpoints or digital biomarkers which can supplement or even replace traditional measurements […]
“New Ways of Measuring Fatigue and Sleep Disturbances in Chronic Diseases” Webinar
Our IDEA-FAST webinar on “New Ways of Measuring Fatigue and Sleep Disturbances in Chronic Diseases” witnessed active participation from a diverse group of attendees, including representatives from patient advocacy organizations, industry professionals, researchers, and healthcare providers. The session focused on discussing the latest advancements in research and the potential benefits that digital endpoints can bring […]
Clinical Delivery Staff Interview – Lauren John
Clinical staff members play a pivotal role in the delivery of the ongoing Clinical Observational Study. Their expertise and dedication are essential for the successful execution of the study. To better understand what their roles and responsibilities are, we have engaged in a conversation with Ms. Lauren John, a research practitioner affiliated with the Royal […]
ISPG Conference Travel Award
We are delighted to announce Dr. Chloe Hinchliffe has been awarded one of the Travel Stipends to attend the ISPGR 2023 Conference in Brisbane, Australia. The International Society of Posture & Gait Research (ISPGR) World Congress brings together posture and gait researchers and clinicians from around the world for discussion and exchange of the most cutting edge […]
New Paper on Digital Endpoints in Alzheimer’s Disease and other Neurodegenerative Diseases
New paper out! Digital endpoints in clinical trials of Alzheimer’s disease and other neurodegenerative diseases: challenges and opportunities by Brem et al. The publication draws on findings and lessons learned from three IMI initiatives, RADAR-AD, IDEA-FAST and Mobilise-D to discuss: To read the paper follow the link: doi.org/10.3389/fneur.2023.1210974
