IDEA-FAST Science Showcase
On 1st December 2021, IDEA-FAST invited its consortium members to join an internal Science Showcase. The aim of the Science Showcase was to review the Feasibility Study (FS) data and brainstorm the next analysis steps in a clinical context and in the light of the feedback we have received from European Medicines Agency (EMA) on […]
Wild by Design: Workshop on Designing Ubiquitous Health Monitoring Technologies for Challenging Environments
There is a growing focus on monitoring health in uncontrolled (aka in-the-wild) settings. This is partially due to the limitations of occasional formal assessments, and to the increasing availability of off-the-shelf sensing devices and applications. This change of paradigm promises fine-grained monitoring of chronic and neurodegenerative diseases, early prediction of health conditions, accessible self-management, and […]
New publication – WildKey: A Privacy-Aware Keyboard Toolkit for Data Collection In-The-Wild
Touch data, and in particular text-entry data, has been predominantly collected in laboratory settings, under controlled conditions. While touch and text-entry data has consistently shown its potential for monitoring and detecting a variety of conditions and impairments, its deployment in-the-wild remains a challenge. In the paper, WildKey, an Android keyboard toolkit is presented that allows […]
New publication – Data Contribution Summaries for Patient Engagement in Multi-Device Health Monitoring Research
Fatigue and sleep disturbances are symptoms of several chronic diseases associated with poor quality of life and increased healthcare costs. A large part of measuring patient’s health is using self-reported methods that can be prone to recall bias or require extensive effort to complete, e.g., sleep diaries. Building on these challenges, IDEA-FAST aims to determine […]
Sjogren Europe & the BSSA (British Sjogren’s Syndrome Association) live webinar on chronic fatigue
During the Sjogren Europe & the BSSA live webinar, the IDEA-FAST project’s scientific coordinator – professor Wan Fai Ng (Newcastle University) presented about chronic fatigue. Chronic fatigue is one of the most prevalent and debilitating symptoms in primary SS (pSS). Approximately 70% of pSS patients suffer from disabling fatigue, which is associated with reduced health-related […]
IDEA-FAST qualification advice request submitted to EMA!
On 27 Sep 2021, the IMI Consortium IDEA-FAST submitted a request for an initial CHMP (Committee for Medical Products for Human Use) qualification advice to discuss the results of the Feasibility Study and acceptability of the proposed design of the Clinical Observational Study for supporting the future EMA qualification procedure for the proposed endpoints use […]
IDEA-FAST is pleased to welcome LUPUS UK on board of the project!
One of the ways we ensure that the patient voice is heard and put at the centre of the project in all its stages is by having monthly meetings with representatives of several patients organisations in the IDEA-FAST Patient Engagement and Involvement group. Last month, we have welcomed LUPUS UK on board of our group. Paul […]
Sleepless society – The socioeconomic burden of sleep disturbances
“Being up with the lark”, “the early bird catches the worm”, or “being a night owl” – these phrases are all familiar. A work-focused and digitally connected culture produces the notion of constant availability and the pressure of maximizing time, even if this comes at the expense of our sleep. Looking at sleep patterns, there is a trend towards shorter […]
2nd General Assembly
The 2nd General Assembly was held as a virtual meeting on 8th – 9th March 2021, with around 130 participants from all partners as well as external members of the Scientific Advisory Board and the Patient Specialist Advisory Board. Progress on all work packages was presented and discussed, with particular focus on the current Feasibility Study, lessons learned […]
