Newcastle University Begins Recruitment for Clinical Observation Study
We are delighted to announce that Newcastle University has recruited two patients for the start of the IDEA-FAST Clinical Observation Study. The goal of the study and indeed the IDEA-FAST project is to identify, profile and validate digital solutions based on mobile or residential technology for remote assessment of fatigue and sleep disturbances that could […]
IDEA-FAST Meeting on the Clinical Observation Study in Kiel, May 2022
On May 30 and 31, members of IDEA-FAST met in Kiel, Germany, to prepare for the start of the Clinical Observation Study (COS). The University Medical Centre Schleswig-Holstein as sponsor of the COS with their Neurogeriatrics Lab prepared the meeting for representatives from almost all clinical sites participating in the project. Important aspects of recruitment […]
IDEA-FAST @ IBD-DACH
IDEA-FAST will be represented at the annual IBD-DACH congress (inflammatory bowel disease, Germany, Austria, Switzerland). Professor Fai Ng is going to give a presentation on IDEA-FAST as an overview on eHealth in general and the use of digital endpoints in IBD research.
Season greetings, end of year update – letter from the project coordinator
Dear all, With the end of 2021 and the Christmas season approaching, I am writing to express my gratitude and to congratulate you on your contributions and achievements over the past 12 months. It has been a real pleasure and privilege to work with this amazing consortium. Despite the intensely challenging circumstances, you have once […]
IDEA-FAST Science Showcase
On 1st December 2021, IDEA-FAST invited its consortium members to join an internal Science Showcase. The aim of the Science Showcase was to review the Feasibility Study (FS) data and brainstorm the next analysis steps in a clinical context and in the light of the feedback we have received from European Medicines Agency (EMA) on […]
Wild by Design: Workshop on Designing Ubiquitous Health Monitoring Technologies for Challenging Environments
There is a growing focus on monitoring health in uncontrolled (aka in-the-wild) settings. This is partially due to the limitations of occasional formal assessments, and to the increasing availability of off-the-shelf sensing devices and applications. This change of paradigm promises fine-grained monitoring of chronic and neurodegenerative diseases, early prediction of health conditions, accessible self-management, and […]
New publication – WildKey: A Privacy-Aware Keyboard Toolkit for Data Collection In-The-Wild
Touch data, and in particular text-entry data, has been predominantly collected in laboratory settings, under controlled conditions. While touch and text-entry data has consistently shown its potential for monitoring and detecting a variety of conditions and impairments, its deployment in-the-wild remains a challenge. In the paper, WildKey, an Android keyboard toolkit is presented that allows […]
New publication – Data Contribution Summaries for Patient Engagement in Multi-Device Health Monitoring Research
Fatigue and sleep disturbances are symptoms of several chronic diseases associated with poor quality of life and increased healthcare costs. A large part of measuring patient’s health is using self-reported methods that can be prone to recall bias or require extensive effort to complete, e.g., sleep diaries. Building on these challenges, IDEA-FAST aims to determine […]
Sjogren Europe & the BSSA (British Sjogren’s Syndrome Association) live webinar on chronic fatigue
During the Sjogren Europe & the BSSA live webinar, the IDEA-FAST project’s scientific coordinator – professor Wan Fai Ng (Newcastle University) presented about chronic fatigue. Chronic fatigue is one of the most prevalent and debilitating symptoms in primary SS (pSS). Approximately 70% of pSS patients suffer from disabling fatigue, which is associated with reduced health-related […]
IDEA-FAST qualification advice request submitted to EMA!
On 27 Sep 2021, the IMI Consortium IDEA-FAST submitted a request for an initial CHMP (Committee for Medical Products for Human Use) qualification advice to discuss the results of the Feasibility Study and acceptability of the proposed design of the Clinical Observational Study for supporting the future EMA qualification procedure for the proposed endpoints use […]
