Real World Stories – Eden Byrne
In this instalment of the Real-World Series, we have a chat with Eden Byrne, a member of our IDEA-FAST Specialist Advisory Board. A 22-year-old from Belfast, Eden is studying Childhood and Youth Studies, whilst also balancing volunteering and her health conditions. Eden was diagnosed with Long COVID, and since then has been an avid participant […]
Real World Stories – Nancy Brown
In this instalment of the Real-World Series, we have a chat with Nancy Brown, a member of our IDEA-FAST Specialist Advisory Board. Nancy was diagnosed with Rheumatoid Arthritis almost 20 years ago, and since then has been a fierce advocate and avid participant in clinical trials and projects. When did you get your diagnosis? What […]
Real World Stories – Jordi Cruz Gomez
In this instalment of the Real World Stories series, we had a conversation with Jordi Cruz Gomez, a physiotherapist at the Asociación Parkinson Madrid (APM) who also lives with Parkinson’s disease himself. Jordi is currently training to represent Spain in Climbing at the Paralympic Games in Los Angeles 2028. How did you learn about IDEA-FAST? […]
Real World Stories – Ulli Funken
Since its inception, the heart of the IDEA-FAST initiative has been the involvement of patients in all possible facets of the project. To shed light on their participation and experience within the project, we will be presenting a series titled “Real World Stories”, a set of conversations with some patient representatives who have been involved […]
Celebrating Early Career Researchers in IDEA-FAST
In IDEA-FAST, we firmly believe that the passion, energy, and fresh perspectives of Early Career Researchers (ECRs) are essential to the success of our ambitious project. These talented individuals are not merely contributors; they are the innovators and visionaries shaping the future of healthcare and digital health technologies. Through their dedication, expertise, and curiosity, our […]
Happy Holidays from IDEA-FAST
✨ Happy Holidays from the IDEA-FAST Project Team! 🎄✨ As we close the chapter on 2024, we would like to extend our heartfelt gratitude to all our consortium members, partners, and supporters. IDEA-FAST is making great progress, thanks to your dedication and hard work over the past year, which has been essential to its advancement. […]
Inside the IDEA-FAST Project: Perspectives from the Principal Investigator at Asociación Parkinson Madrid
Miriam Grande is a Researcher at the Unidad de Innovación e Investigación at Asociación Parkinson Madrid (APM). She holds degrees in Physiotherapy and Psychology and has experience as a lecturer at the Complutense University of Madrid (UCM). Miriam has actively participated in several research projects with the association and has extensive training and expertise in […]
Early Career Researcher Spotlight – Dr. Ekaterina Sorkina
Dr. Ekaterina Sorkina is a Clinical Research Fellow in Infectious Diseases at the Newcastle Upon Tyne Royal Victoria Infirmary. She is a Doctor of Medicine and further obtained her PhD in Endocrinology in 2015 at the Sechenov First Moscow State Medical University in Russia. Ekaterina continued her work as a Senior Researcher, consulting Endocrinologist, and […]
Early Career Researcher Spotlight – Laura Kuijper
In this edition of the Early Career Researcher Spotlight we talk to Ms. Laura Kuijper. Laura Kuijper is a research psychologist at the Leiden University Medical Center (LUMC). Since graduating cum laude from her Cognitive Neuroscience masters program at Leiden University in 2021, she works at the Huntington’s Disease Research Team on multiple studies related […]
The Ignored Symptom: Sleep Dysfunction in Neurodegenerative Diseases
Tonight nearly 750 million people in Europe will put on their pajamas, lay in their beds, close their eyes and try to fall into a deep and restful sleep. However, 35% of these people will lay awake, toss and turn and have disrupted and unsatisfying sleep. The morning after a restless night is usually met […]