News

A new paper by Hinchliffe et al. has been published. In this paper the authors explore the relationships between gait characteristics derived from an inertial measurement unit (IMU) and patient-reported fatigue in the IDEA-FAST […]

We are proud to announce the latest edition of the IDEA-FAST Newsletter is here! Here are some of the highlights: Over 1200 participants recruited across 19 active sites in our Clinical Observation Study, thanks […]

On March 12th-13th, in Desenzano del Garda, the IDEA-FAST consortium gathered to discuss current progress and next steps during the 2024 General Assembly. More than 100 participants from over 50 partner organizations took part […]

Dr. Chris Lamb of Newcastle University was a keynote speaker during the ECCO European Crohn’ and Colitis Organisation Congress held on February 21st -24th in Stockholm. His plenary talk with Cate Titterton focused on […]

We are excited to announce two new partners have officially joined the IDEA-FAST consortium. Bristol-Myers Squibb and University College Cork have commenced their activities in the project during the last quarter of 2023.  Bristol-Myers […]

We’re thrilled to share a significant milestone in our journey – the recruitment of the 1000th participant in our IDEA-FAST Clinical Observation Study (COS)!  This marks a monumental achievement as we hit four digits […]

In attention to our Spanish speaking community! Our partners from Asociación Parkinson Madrid are organising on Friday, 26 January, a conference about the participation of patients with Parkinsons’ disease in clinical trials. The sessions […]

We are proud to announce that IDEA-FAST has been highlighted in the European Commission Innovation Radar. Three of our Innovations have been evaluated as excellent by the European Commission. Our main innovations encompass: New […]

We are proud to announce the IDEA-FAST September Newsletter is here! Find out about recent events, publications, and IDEA-FAST partners, as well as upcoming IDEA-FAST activities. We would like to say a big thank […]

Check out our new paper! The article reviews IDEA-FAST’s efforts to develop digital measures of fatigue and sleep disturbances for multiple diseases, and the advice provided by the European Medicines Agency on its plans […]

Patients with debilitating fatigue know they can often be left feeling ignored and maligned. While fatigue is surprisingly common across many neurodegenerative and inflammatory conditions, there is still widespread scepticism that the condition exists. […]

From BITS to BETTER Reminder: Register now for the workshop on meaningful patient involvement in developing digital endpoints in research and disease management  22 September 2023, 12.30-17.00 o’clock, Beatrixgebouw (Jaarbeurs), Utrecht (NL) or online. […]

Congratulations to Nick Taptiklis and Michele Veldsman of Cambridge Cognition who will represent IDEA-FAST at the ISCTM 2023 Autumn Conference. Nick’s poster entitled “Automated Extraction of Fatigue Content from Voice Diary Data”, as well […]

From BITS to BETTER – Workshop on meaningful patient involvement in developing digital endpoints in research and disease management Beatrixgebouw (Jaarbeurs), Utrecht (NL), 22nd September 2023 12.30 – 17.00 o’clock IDEA-FAST and several prominent […]

We are delighted to announce Dr. Chloe Hinchliffe has been awarded one of the Travel Stipends to attend the ISPGR 2023 Conference in Brisbane, Australia. The International Society of Posture & Gait Research (ISPGR) World […]

New paper out! Digital endpoints in clinical trials of Alzheimer’s disease and other neurodegenerative diseases: challenges and opportunities by Brem et al. The publication draws on findings and lessons learned from three IMI initiatives, […]

Dr. Chris Lamb, the IDEA-FAST cohort co-lead for Inflammatory Bowel Disease, has been awarded the 2023 Sir Francis Avery Jones Medal. Dr. Chris Lamb is a Senior Lecturer and Honorary Consultant in Gastroenterology and […]

“Reverse engineering of Digital Measures” was the second in a series of meetings examining paths forward for enhancing the utility of digital measures, organised by Foundation for the National Institutes, ETH Zürich, European Medicines […]

Dr. Chloe Hichliffe, postdoctoral researcher in the Brain and Movement (BAM) Research Group at the Translational and Clinical Research Institute of Newcastle University, will hold a presentation on IDEA-FAST at the conference in Swansea, Wales. The […]

On Friday was World IBD Day! 💜 It’s the day when patient organisations, patients, families, supporters and many other stakeholders join forces to raise awareness of Inflammatory Bowel Disease (IBD)  and how it impacts […]

The Digital Biomarker Summit USA will bring together industry leaders who will present the work that is currently underway with DHTs and digital biomarkers, aiming to drive the industry forward through education and collaboration. […]

We’re thrilled to announce that the final event report for the multi-stakeholder workshop on Enhancing Patient-Centric Outcome Measures and Clinical Trials with Digital Health Technologies, organized by the European Federation of Pharmaceutical Industries and […]

We are proud to have one of our latest publications featured by the Innovative Health Inntiative (IHI). Find out more here: Wearable technologies can reliably measure fatigue and disturbed sleep in chronic disease (europa.eu) […]

We are excited to announce that the IDEA-FAST 2023 General Assembly was a great success! The event was held in Barcelona on 16 and 17 March, with attendance of 100 consortium members from 40 […]

Dear readers, The Clinical Observation Study (COS) is on a roll, and we are proud to present the first Newsletter of the IDEA-FAST COS, with the latest recruitment status. The COS is an ambitious […]

We are delighted to announce that University of Glasgow has recruited their first participant in the IDEA-FAST Clinical Observation Study. So far 13 sites opened for recruitment and 7 more are expected to soon […]

We have great news! Devon and Exter NHS started the recruitment of participants in the Clinical Observation Study of the IDEA-FAST project, joining the other clinical sites that are now on a roll. We […]

The IDEA-FAST Clinical Observation Study is on a roll! We are proud to announce that Stavanger University recruited last week their first patient and they are ready to start. We are looking forward to […]

We are delighted to announce that Newcastle University has recruited two patients for the start of the IDEA-FAST Clinical Observation Study. The goal of the study and indeed the IDEA-FAST project is to identify, […]

On May 30 and 31, members of IDEA-FAST met in Kiel, Germany, to prepare for the start of the Clinical Observation Study (COS). The University Medical Centre Schleswig-Holstein as sponsor of the COS with […]

IDEA-FAST will be represented at the annual IBD-DACH congress (inflammatory bowel disease, Germany, Austria, Switzerland). Professor Fai Ng is going to give a presentation on IDEA-FAST as an overview on eHealth in general and […]

Dear all, With the end of 2021 and the Christmas season approaching, I am writing to express my gratitude and to congratulate you on your contributions and achievements over the past 12 months. It […]

On 1st December 2021, IDEA-FAST invited its consortium members to join an internal Science Showcase. The aim of the Science Showcase was to review the Feasibility Study (FS) data and brainstorm the next analysis […]

There is a growing focus on monitoring health in uncontrolled (aka in-the-wild) settings. This is partially due to the limitations of occasional formal assessments, and to the increasing availability of off-the-shelf sensing devices and […]

Touch data, and in particular text-entry data, has been predominantly collected in laboratory settings, under controlled conditions. While touch and text-entry data has consistently shown its potential for monitoring and detecting a variety of […]

Fatigue and sleep disturbances are symptoms of several chronic diseases associated with poor quality of life and increased healthcare costs. A large part of measuring patient’s health is using self-reported methods that can be […]

During the Sjogren Europe & the BSSA live webinar, the IDEA-FAST project’s scientific coordinator – professor Wan Fai Ng (Newcastle University) presented about chronic fatigue. Chronic fatigue is one of the most prevalent and […]

On 27 Sep 2021, the IMI Consortium IDEA-FAST submitted a request for an initial CHMP (Committee for Medical Products for Human Use) qualification advice to discuss the results of the Feasibility Study and acceptability […]

One of the ways we ensure that the patient voice is heard and put at the centre of the project in all its stages is by having monthly meetings with representatives of several patients organisations […]

We are pleased to welcome Ioannis Pandis as the Interim Project Lead for IDEA-FAST, who is taking over the role from Fred Baribaud. Ioannis is already contributing to the project as the Industry Lead […]

The Innovative Medicines Initiative (IMI) has shared the latest joint vision from MOBILISE-D and IDEA-FAST to strengthen R&D in the area of remote monitoring! Read the news here: https://www.imi.europa.eu/news-events/newsroom/digital-biomarkers-initiative-help-researchers-navigate-new-reality-roles […]

The 2nd General Assembly was held as a virtual meeting on 8th – 9th March 2021, with around 130 participants from all partners as well as external members of the Scientific Advisory Board and the Patient Specialist […]

Mobilise-D is working on digital mobility assessment in chronic obstructive pulmonary disease (COPD), Parkinson’s disease (PD), multiple sclerosis (MS) and recovery from proximal femoral fracture (PFF). IDEA-FAST is working to identify digital endpoints to […]

Mobilise-D and IDEA-FAST, two IMI projects that aim to develop real-world digital outcomes, have announced their plan to collaborate, to bring synergy and increase the impact and benefits of the digital health technologies developed […]

Professor Walter Maetzler from Universitätsklinikum Schleswig-Holstein wrote a blog post on his personal motivation for participating in the IDEA-FAST project and the potential impact our project can have on defining and measuring fatigue. Is […]

Mayca Marín, Marta Burgos and from Asociación Parkinson Madrid wrote a new blog post on the impact that the Covid-19 pandemic had (and continues to have) on people affected by Parkinson’s, as well as […]

Thursday and Friday ( November 5 and 6) saw the running of the first IDEA-FAST Hackathon. It was a great success with 25+ participants from across Europe, spanning 8 partner organisations and 5 work […]

For the Feasibility Study, the four pilot centres – University of Newcastle upon Tyne (UK), Universitätsklinikum Schleswig-Holstein (GER), Erasmus Universitair Medisch Centrum Rotterdam (NL), and George-Huntington-Institut (GER) – have now all received ethical approval […]

The IDEA-FAST Blog has published its first contribution from Kirsten Emmert on the feasibility study: The IDEA-FAST feasibility study – Finding the most promising digital measures for sleep disturbances and fatigue   […]

The IDEA-FAST data management platform first release is now live. The platform has been deployed and is ready to receive data collected from the Feasibility Study. […]

A study involving a key member of the IDEA-FAST [1] consortium presents new benchmarks to support the continued development of systems that enable healthcare practitioners to better manage patients with sleep disorders. The findings, […]

After the successful Kick-Off meeting in Newcastle in February, the IDEA-FAST team worked hard to make the vision of the feasibility study come to life. Thanks to the device testing team, we were able […]

The project kick-off meeting was organised by Newcastle University and was held at the Newcastle United Football Club. Fai Ng and Fred Baribaud described the concept & approach for the project and strategies for […]

Newcastle upon Tyne, February 05, 2019 – A new European research project to Identify Digital Endpoints to Assess FAtigue, Sleep and acTivities of daily living (acronym: IDEA-FAST) in the following neurodegenerative disorders (NDD): Parkinson’s […]